Today’s update is from Bob’s sister, Susie:
Bob was moved from the ICU to Shady Grove Adventist Rehabilitation Hospital in Rockville on Tuesday. This is an excellent rehab facility, located, thankfully, less than 10 minutes from our neighborhood. Mornings are devoted to physical and occupational therapy, and meals are served in a large, light-filled dining room. Each patient has an entire care team, headed by a case manager, with whom Barbara has met. The general atmosphere is focused and lively, with bustling activity and a great diversity of patient needs and abilities. The goal is to guide patients to independence as quickly as possible, and stays are usually between a few days to a few weeks.
The initial transfer was confusing to Bob, and the first day he was quite disoriented and angry. He seemed to have thought that when he left the ICU, he’d somehow be transported magically back “home,” where everything would be to the way it was, and so the adjustment to reality was rough. The first night, he tried to climb out of his bed; thankfully, he was discovered before he made it to the floor. To keep him safe without restraints, the staff installed a kind of tent-like structure with mesh sides that zip shut over his bed. Needless to say, Bob was not pleased about that. Grrrr.
In spite of all this, his P.T. sessions have gone pretty well. Erica, his physical therapist, gives him generous encouragement, and Bob’s responded by working hard with her. He’s also got a speech therapist, who is working with him on swallowing, which has been a real problem since the ventilator was removed a few weeks ago. She’s helped him to be able to begin eating again, and his meals are served at a special table in the dining room for people with swallowing issues. He still has the PEG in his stomach for supplementary nutrition, but this is definitely a step in the right direction.
We’ve all talked with Bob about his issues with his “tent,” and he’s pretty well accepted that it’s not there to punish him, but to keep him safe and make sure his legs can heal. He’s even discussed it with his nurses and promised that he won’t “try anything stupid” if they leave the sides open, which they do as much as possible, especially when he has visitors…
…which he did on Friday – his 52nd birthday! The staff began his day by bringing him a bouquet of balloons, which they tied to his bed. In the afternoon, Barbara, Susie & George arrived with handmade cards from Kevin, Melanie & Jeremy, along with a framed picture and bio of Bob, written by Walt, to hang on his wall – to introduce his caregivers to the “real Bob”. When we gave it to him, he held it in his hands and read every word before looking up with a smile and pronouncing, “That’s the real me!”
The best birthday gift of all was a phone call that came in at 4:40: “Hello? This is Clarence Clemons. I’m calling to wish Bob a happy birthday.” Yes, the Big Man, himself. Several months ago, Bob had bought a ticket to the Bruce Springsteen concert here in D.C. that took place this past week, as a birthday present to himself. After the accident, it was clear that there was no way he’d be able to make it to the concert, so his brother David, who’s interviewed Clarence a number of times, started the process of getting in touch with his “people,” to see if they could make something happen in time for Bob’s b-day. And as we all know, once David decides to get something done, it does get done! He told us that when Johnny Green, Clarence’s rep, reached him, the Big Man thanked him for the opportunity to call Bob. And he placed the call himself, no intermediaries. Do we need to tell you how happy Bob was? I don’t think so. Big, big grin as they talked, telling each other they were each their guiding light, with “God bless”es all around.
“I’ll be checking back with him,” Clarence said as he hung up. So something magical did happen after all – in spite of the tent, the still-broken legs, and the long, uncertain road ahead. On Saturday, Barbara, Walt, Susie & George had supper with Bob in his dining room, and Sunday Mimi & company came down from Phillie to see him. Barbara has told Bob’s social worker about Bob’s piano playing, so we’re hoping that this weekend’s rec therapy will include a visit to the keyboard. Things are changing every day, but that’s the news as of this moment. And now, on to tomorrow.